We are currently entering week 3 of Daisy’s stay at Great Ormond Street hospital. On the 14th October she had an 8 hour surgery to her bladder and abdomen aimed at sorting some ongoing problems and creating some solutions which will improve her quality of life. Thanks to the wonderful, skilled team looking after her the surgery went really well and she is recovering slowly but surely, the ongoing issue, as always, being the management of her pain . Of course Daisy loves to move the goal posts every now and then, this admission she developed an extreme sensitivity to intravenous morphine which means we really can’t use it.
It’s been so difficult dividing myself between here and home, making sure Andy is eating OK, rushing to meet him at outpatients appointments. And while our other three children are now teenagers, in many ways they need me now more than ever to be a listening ear and to help source the lost travel card from a distance (I have special skills in this department).