Sometimes it feels like I'm a character in some Orwellian nightmare. Not because of losing Andy or because of any of the children's issues but because my life, my plans, my hopes are all controlled by someone called "The Commissioner"
The Commissioner is a faceless person, they sit in an office, they are not always the same person, they change frequently. I have rarely met them but they know me, or rather they know my daughter. They don't know her name, just her initials. It's better that way. The more you know about someone the easier it is to become emotionally involved. And The Commissioner doesn't want to become emotionally involved.
The Commissioner holds the budget. They look at their spreadsheets and they see the big figures and wonders who is eating up all of their budget, who is this very expensive person?
Websites close to my heart
- Shooting Star Chase (Daisy's Hospice)
- Great Ormond Street Hospital Children's Charity
- Torbay Holiday Helper's Network
- Sick Children's Trust
- Daisy's Angels - Facebook Page
- About Costello Syndrome
- Asperger Syndrome
- Caudwell Children
- Together for Short Lives (Children's Hospices in the UK)
- Costello Syndrome Support Group
- Give Kids The World
- PostPals - Putting Smiles on Sick Children's Faces
- Singing Hands (Daisy is their No1 Fan!)
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