Be careful what you wish for

Christmas.  For Daisy this was the most important time of the year (closely followed by her birthday, and then everyone else's birthdays).

 The build up started in the summer.  With the demands for me to write lists for "Ho Ho Ho".  She loved to send letters folding up the pieces of paper she had scribbled on and demanding a stamp so that they could be sent (quickly please mummy)

The Singing Hands Christmas DVD would be on constant loop and gradually over the months excitement would build as decorations appeared in the shops and the rest of the world caught up with Daisy's festive enthusiasm.  Last year I even broke my absolute rule and put the tree up in November, it had been getting earlier and earlier each year and last year was the first Christmas since Andy's funeral and I was prepared to do anything to make it special, including giving in to Daisy's demands and putting the tree up before December.

I'm so glad I did.  I'm so glad I trawled the internet trying to get hold of the Baby Alive doll she kept watching You Tube videos of.  I'm so glad she dressed up in her Christmas hat and visited friends,  delivering cards and presents.

visiting the GP surgery to deliver cards to our friends there

Wear Jeans, Change Lives


Daisy was born with a completely sporadic gene mutation which caused her to have the rare disease, Costello Syndrome.  She was rare, especially as it was likely that she had some secondary, undiagnosed mutation which caused her to have such extreme symptoms.

An anniversary gift to Andy

The best piece of advice I have ever been given was by a colleague when I was working at Hewlett Packard.  I really wanted a global role and to spend more time working internationally.  "Decide what you really want and make it happen" she said "otherwise you will just make an excuse".

This has become the mantra for how I have lived my life ever since. (I got the role by the way).   It's what has helped me to develop the resilience and drive to get through some of my toughest times over the past few years.  

I wanted to be the best possible mum for Daisy, I wanted to make sure that our other children did not miss out on childhood, I wanted to ensure our marriage would survive...

After Andy died I was determined to write the book that he so wanted me to write.  I wanted it to be published by our 25th wedding anniversary, my gift to him.

So young! 12th September 1992



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