tag:blogger.com,1999:blog-18079831.comments2024-02-27T10:51:53.355+00:00Was this in the Plan?Stephanie Nimmohttp://www.blogger.com/profile/17837022520852263952noreply@blogger.comBlogger539125tag:blogger.com,1999:blog-18079831.post-10310355618628013092021-12-23T02:17:25.979+00:002021-12-23T02:17:25.979+00:00This book has been a journey for you but I hope yo...This book has been a journey for you but I hope you can see how proud you should be of yourself. I haven’t read it yet but I believe in it as I believe in you. <br /><br />I’m praying that isolation and Covid is kind to you and if you ever what to break the day up let’s zoom and chat.<br /><br />Christmas is a time that memories can be painful, I often ask myself if they should be I mean they are the pain of missing. I know how hard it is.<br /><br />Just wanted to share so much love and the cover we’ll talk just perfect. Daisy sent xxx Sara Meredithhttps://www.blogger.com/profile/08232955671516278944noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-80912523680221193482021-02-26T14:42:05.661+00:002021-02-26T14:42:05.661+00:00Pressed too soon... I also agree with your thought...Pressed too soon... I also agree with your thoughts and feelings on the vaccinations and wish others had been prioritised before me.Stephs Two Girlshttps://www.blogger.com/profile/09592292485187553690noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-61544362975260502942021-02-26T14:41:01.889+00:002021-02-26T14:41:01.889+00:00Oh yes, all of this! We had an unexpected hospital...Oh yes, all of this! We had an unexpected hospital admission a few years ago and I’ve written a blog post about how the play therapist and the sign on the door made such a huge difference to us!Stephs Two Girlshttps://www.blogger.com/profile/09592292485187553690noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-35720943018455239182020-01-30T23:01:11.274+00:002020-01-30T23:01:11.274+00:00Dear Steph thank you for sharing with us just a ti...Dear Steph thank you for sharing with us just a tiny bit of your pain that we can understand those around us a little better. We appreciate all that you do at your cost for the sake of Daisy’s family’s story being told to help others. We will never understand that cost. Much love to you Pamhttps://www.blogger.com/profile/10831566417498309071noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-20404515919363861972020-01-30T22:50:10.164+00:002020-01-30T22:50:10.164+00:00Such sad emotion. You are allowed that, obviously....Such sad emotion. You are allowed that, obviously. Huge hugs to you xxStephs Two Girlshttps://www.blogger.com/profile/09592292485187553690noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-54036446506050672462019-04-28T08:43:38.440+01:002019-04-28T08:43:38.440+01:00Well said Steph, I'm totally dismayed to hear ...Well said Steph, I'm totally dismayed to hear that measles is actually making a come back when it was almost eradicated. I remember having it when I was five too, I was really poorly and it started on the first day of our family holiday meaning we had to come home again. ONe of my first jobs was as a carer for young people in their own homes to help out their parents. I cared for a girl of 24, who was a couple of years older than me at the time. She was brain damaged from measles and spent her life in bed or a wheelchair. I had to feed her, wash her, take her to bed like she was a baby. It really brought it home to me and when I had my children a few years later it was right at the high point of the Wakefield drama. I still vaccinated, I'd rather Autism than severe brain damage or death. As it happens, I have five children now (all vaccinated) three have autism, two don't. Even with autistic children I do NOT and will not ever blame it on the vaccination and I'm forever grateful that none of my children have had measles, mumps or rubella. xAnnehttps://www.blogger.com/profile/14922568143111623696noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-90564917531211385982019-04-05T11:36:12.237+01:002019-04-05T11:36:12.237+01:00What a lovely post. I have 6 children but my disab...What a lovely post. I have 6 children but my disabled son died at 20 last year. You are an incredible person who has coped with loss so well, it helps me to see that life does go on even when we don't want it to. Thank you for writing about your life xAnonymoushttps://www.blogger.com/profile/11470306597366990655noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-13584755739489590502019-03-16T15:13:34.595+00:002019-03-16T15:13:34.595+00:00Thankyou for sharing your experience and thoughts ...Thankyou for sharing your experience and thoughts in such an honest and positive way.<br />Anonymoushttps://www.blogger.com/profile/16564529014189783942noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-61959295929639426842019-03-16T00:26:14.289+00:002019-03-16T00:26:14.289+00:00I’ve never really reflected on the term ”passed aw...I’ve never really reflected on the term ”passed away”, but the phrase about having gone to ”a better place” would have made me uncomfortable too. It’s a bit like when I see people saying that a child has ”gained their angel wings” or ”gone to be with Jesus”. They all seem to signal that we should be happy for them that they’ve died. Maybe it works as comfort to some, but not for me. And I totally agree with you when it comes to talking about dying as losing a fight or battle, it doesn’t sit right with me for the reason you’ve mentioned. Sensational Learning with Penguinhttps://www.blogger.com/profile/03722372510407260358noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-40828999055160766722019-03-16T00:22:31.692+00:002019-03-16T00:22:31.692+00:00Plain, honest talking, but with thought behind it....Plain, honest talking, but with thought behind it. This is exactly what you are doing best, what others can and need to understand. Brilliantly put, for all of us who have not yet been in that situation xStephs Two Girlshttps://www.blogger.com/profile/09592292485187553690noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-84616944226956116772018-04-15T15:57:57.598+01:002018-04-15T15:57:57.598+01:00Hi Meredith - I've only just got your comment,...Hi Meredith - I've only just got your comment, can you email me via the contact form on the blog and I'll get in touch, I have loads of pics of Star Trek and we are still in touch with Benny & Peter. Benny spoke at Andy's funeral - I'll google you too to see if I can find you xx<br />Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-67252985360279809452018-01-30T02:38:34.992+00:002018-01-30T02:38:34.992+00:00Stephanie, I co directed the star trek show with J...Stephanie, I co directed the star trek show with John Gore that Andy was in. Years ago. I had no idea until just now, Jan 29, 2018!that he died. I am so terribly sad to learn this! He was a dear dear person. I just lost my boyfriend to lung cancer 6 months ago. I googled andy tonight because I discovered a letter he wrote at my mom's house. it was sometime after the show, when we all still hoped the show would continue. it was do sweet snd brought back so many nice memories, that i copied it and was going to send it back to him with a belated Christmas card. I googled cause I was unsure of your correct address. Omg. Stephanie, I see you have been doing so much!! I am amazed by you and I haven't hardly begun to read you site or blog. I am going to order your book. I have old pictures from star trek...do you have any? He was wonderful as Scotty. I really DO want your correct mailing address so I can send you things... Love always, my heart is yours, - meredithMeredith Wrightnoreply@blogger.comtag:blogger.com,1999:blog-18079831.post-84613056524515558832017-08-08T15:30:13.060+01:002017-08-08T15:30:13.060+01:00Steph, I read your story in the New York Times thi...Steph, I read your story in the New York Times this afternoon and was moved to tears ... I don't have the words to say what I'd like to, but I am so very sorry for your losses and what you and your family have had to endure. I am familiar with loss and grief in my own way, but I can't quite fathom what you've experienced myself. I know I will be returning to your blog again and again for encouragement on how to "just keep swimming". <br /><br />xo JaimeAngloyankophilehttps://www.blogger.com/profile/13798135990583648390noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-33480966658843246712017-06-26T00:13:44.185+01:002017-06-26T00:13:44.185+01:00Dear Steph,
Your beautiful and truthful blog is mo...Dear Steph,<br />Your beautiful and truthful blog is moving and inspirational. My darling daughter, who we sadly said goodbye to in February, also went to Shooting Star Chase, and I remember you and Daisy happily bathing her doll outside on a hot day in late summer I just want to say thank you for writing this-it helps me to be strong and positive. I wish all your family all the very best.<br />AmyAmy Phttps://www.blogger.com/profile/04942204953216787438noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-71029993468990585552017-02-12T22:41:06.358+00:002017-02-12T22:41:06.358+00:00Bowie, Dylan and Cash I get 100%. Running not so m...Bowie, Dylan and Cash I get 100%. Running not so much - I did try it for years but I was terrible at it and finally gave it up in favour of hill walking. The hardship you have faced is something I cannot even imagine but the warmth and positivity in your writing is a genuine inspiration. I've been deeply moved by what I've read here. Thank you.GeorgeKhttps://www.blogger.com/profile/02902182407834860781noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-54907411856037212312017-02-12T22:37:35.597+00:002017-02-12T22:37:35.597+00:00This comment has been removed by the author.GeorgeKhttps://www.blogger.com/profile/02902182407834860781noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-15895251672393744232017-01-31T12:23:10.395+00:002017-01-31T12:23:10.395+00:00I was looking for Information on the EHC and came ...I was looking for Information on the EHC and came across you blog. What you described was so close to home and so well written, which got me reading further. I saw how you dealt with so much and yet remained so strong or so it seemed. People think I am a strong character myself but inside is a different story. I clicked onto the section of yourself and your late husband and sincerely wanted to express how sorry I was for your sad lose. It was truly touching to read and just highlights how some of us have to deal with so much pain in life. I could go on, but I will keep it brief and hope you and family are all well. All the best xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-18079831.post-76865024975679374572016-12-29T20:02:40.277+00:002016-12-29T20:02:40.277+00:00This comment has been removed by the author.PAULhttps://www.blogger.com/profile/08605871357627631408noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-53586868612455599522016-12-15T11:49:01.526+00:002016-12-15T11:49:01.526+00:00Hello your story means so much to me, my little gi...Hello your story means so much to me, my little girl has Costello Syndrome and to hear somebody else struggling with its hardships and facing them with optimism is comforting to hear. We know what it's like, the food pumps, mic-key button falling out, the vomiting, the milestone delays, hair problems (her curly hair is hard to style a lot). I wouldn't trade my girl for the world but would trade places in a heartbeat. Email me sometime Celtic505@hotmail.com we can talk. I only know one other parent with a CS child, Colin Stone from the U.K., his daughter Helina has it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-18079831.post-40038042120761210292015-10-26T21:12:36.415+00:002015-10-26T21:12:36.415+00:00I have Aspergers disorder or syndrome and I know o...I have Aspergers disorder or syndrome and I know only to well how hard it is for someone like to live in society, and this sometimes can drive us to isolation from it I lead an apparent normal life, I go to work every day, I talk to my colleagues but I distance myself from them Haryhannehttps://www.blogger.com/profile/11173591841214802877noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-84365112409491396892015-07-28T14:34:15.807+01:002015-07-28T14:34:15.807+01:00Fantastic site Steph - I have some idea of what yo...Fantastic site Steph - I have some idea of what you're going through with your young plates and grown up plate - keep them spinning, they're worth it and you're doing a brilliant job xxxxx<br />Peter Turnbullnoreply@blogger.comtag:blogger.com,1999:blog-18079831.post-78587763679384119692015-07-25T00:21:02.549+01:002015-07-25T00:21:02.549+01:00So pleased that this trip went well for you. Am su...So pleased that this trip went well for you. Am sure it's given you plenty of food for thought, that you really don't have time for, so hope you're out running again soon ;) xStephs Two Girlshttp://www.stephstwogirls.co.uk/noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-38092719644262637022015-07-07T21:39:35.882+01:002015-07-07T21:39:35.882+01:00there's some great smaller festivals out there...there's some great smaller festivals out there too. Shambala is fantastic, lovely, crazy, good access wise and good music too - I'll be there this year but not with my Stay Up Late hat on, although I will be getting my kids to Stay Up Late!MrBassMan43noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-65427543727728738932015-07-02T10:04:58.407+01:002015-07-02T10:04:58.407+01:00Wow! This is brilliant and something I'd not r...Wow! This is brilliant and something I'd not realised went on. I would love to bring Hugh to a festival but it always seemed unacheiveable. I LOVE the idea of 'stay up late' and the wheelchair accessible bars. I have high hopes for his future knowing that measures like this are being put in place. I'm rea;;y g;ad you all had a wonderful time, and great news about Andy's treatment. Best of luck xxxEmnoreply@blogger.comtag:blogger.com,1999:blog-18079831.post-12665895294895162682015-06-14T18:54:58.713+01:002015-06-14T18:54:58.713+01:00You are an inspiration Steph, and human too. I'...You are an inspiration Steph, and human too. I'm sorry this weekend has been so rubbish, focus on Glastonbury :) As Steph Curtis says below, in the absence of an alternative I too am sending massive virtual hugs (and rioja) and hope you feel better soon. xxxTwinsplustwonoreply@blogger.com