tag:blogger.com,1999:blog-18079831.post1814245630607898161..comments2024-02-27T10:51:53.355+00:00Comments on Was this in the Plan?: Costello Syndrome Curve BallStephanie Nimmohttp://www.blogger.com/profile/17837022520852263952noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-18079831.post-28213629249769830552013-09-02T15:53:23.527+01:002013-09-02T15:53:23.527+01:00I am the foster parent to a 3 year old with Costel...I am the foster parent to a 3 year old with Costello, we are planning to adopt her as soon as possible as well. She has already "coded" 3 times in her short life and had spent her first 18 months living in hospital with one form lung infection or another.<br />We are so in love with our little girl. We will do anything to help her through her life of constant challenges.<br />I'd love to keep in touch with you as this is the first time I've read about your family and little Daisy.<br />Take care.Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-63528930267960943392012-03-25T21:40:27.035+01:002012-03-25T21:40:27.035+01:00Stephanie,
My thoughts are with Daisy and your ent...Stephanie,<br />My thoughts are with Daisy and your entire family. I love to read your reflections concerning the complexities surrounding our children's struggles caused by Costello Syndrome. Just because Micah is no longer with us we are forever effected by Costello. . .<br /><br />Prayers,<br />JannaJanna L. Waltershttps://www.blogger.com/profile/14715429862160573434noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-12372837989334051492012-03-25T11:17:24.886+01:002012-03-25T11:17:24.886+01:00Wow! Scary stuff but I guess 'Just' a prol...Wow! Scary stuff but I guess 'Just' a prolapse is the best news possible. Nice to hear praise for the NHS too.Jacqhttp://mymumdom.comnoreply@blogger.comtag:blogger.com,1999:blog-18079831.post-4615232999333250692012-03-25T10:06:37.146+01:002012-03-25T10:06:37.146+01:00(((hugs))) Steph, how scary :( and like Renata sai...(((hugs))) Steph, how scary :( and like Renata said, weird to say it but how great that it was "just" a prolapse.... what a day though. x0xTwinsplustwohttps://www.blogger.com/profile/14647701493165196509noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-6125593031222663362012-03-25T00:24:23.917+00:002012-03-25T00:24:23.917+00:00As I've said already, I'm so utterly relie...As I've said already, I'm so utterly relieved that it was 'only' a prolapse. The world of good and bad can be somewhat warped when health is just lighter shades of a chronic condition huh?<br /><br />What I am most heartened about reading this post is the support you get from the Costello community. Whilst the diagnosis has most definitely been a white knuckle ride as you say, if you didn't have the diagnosis the doctors wouldn't know to be on the look out for cancer and you wouldn't have other parents to support you. So even though the worry is there, it's good that you know what to worry about- if you see what I mean?<br /><br />The lack of support and just not knowing what to expect or what to look out for is what I find most difficult about Dominic not having a diagnosis, which I guess is why I see the worry as horribly tough for you, but better than not knowing that you need to worry. I hope that makes sense! It's a strange blessing, but a blessing none the less (again just lighter shades of something that isn't so great, but that's the way things are around kids like ours sometimes I guess)<br /><br />Much love to you and Daisy xRenata @ Just Bring the Chocolatehttps://www.blogger.com/profile/18320454374679931079noreply@blogger.com