tag:blogger.com,1999:blog-18079831.post911709501229991955..comments2024-02-27T10:51:53.355+00:00Comments on Was this in the Plan?: Sometimes Pollyanna can take a hikeStephanie Nimmohttp://www.blogger.com/profile/17837022520852263952noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-18079831.post-40798286592425991372013-07-23T13:41:07.339+01:002013-07-23T13:41:07.339+01:00Hello. This is the first time I've visited you...Hello. This is the first time I've visited your blog (found it via Hayley's SEN Britmums round-up). For another wanna-be (but I get the impression I fail more often) Pollyanna to another, I just wanted to say I get it. I totally get it. Thank you for a great read and I look forward to coming back to your blog soon.Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-20574146678401148582013-07-19T12:46:49.062+01:002013-07-19T12:46:49.062+01:00The most powerful post I have read in a while Step...The most powerful post I have read in a while Steph. Much love H xStephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-26323889087801137772013-07-04T20:46:45.032+01:002013-07-04T20:46:45.032+01:00A very powerful and moving post, I don't think...A very powerful and moving post, I don't think I can say anything without sounding wrong, but I think you have shown me and all the others who do not have children with complex needs what life is really like. <br /><br />Thinking of you, and as for the Glad Game, it's okay not to want to play it all the time. <br /><br />Take Care XStephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-77253658823297764502013-07-04T18:47:05.205+01:002013-07-04T18:47:05.205+01:00I really really empathise I really really empathise Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-61008791276692101762013-07-03T18:39:17.684+01:002013-07-03T18:39:17.684+01:00Thank you to everyone for your kind comments, retw...Thank you to everyone for your kind comments, retweets and shares today - I always try and speak for all of us parents who lead a life which wasn't in the plan - I'm glad this post hit home for so many of you xxxStephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-40118541864375076352013-07-03T16:39:14.057+01:002013-07-03T16:39:14.057+01:00i really feel for you and i soooooooooo understand...i really feel for you and i soooooooooo understand. i have a 9 yr old who is autistic, with PANDAS, her immune system is shot, and she had 14 specialist in 2 states. some day i also lose the glad game, but i put a smile on my face and continue. if i don't do it who will? we don't have the same issues that you do but we have many. best of luck and hang in there.Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-51761513604775534182013-07-03T14:13:18.732+01:002013-07-03T14:13:18.732+01:00I am one of those "lucky" mums, who only...I am one of those "lucky" mums, who only has one special need to deal with, and even with that you sometimes find yourself envying those parents who has children with problems that can be fixed, that the system knows, that have support groups... <br />I have no words of wisdom, no advice to give. Just a virtual hug.Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-40060208879417590162013-07-03T14:03:58.242+01:002013-07-03T14:03:58.242+01:00You have said everything so eloquently and capture...You have said everything so eloquently and captured exactly how I feel being the mother of a special needs child, albeit one VERY much less in need of the care your daughter requires. You carry on because you have to and not necessarily because you want to and I do get tired of hearing people tell me how strong I am and that I always seem so upbeat etc. I hope, despite the texting etc, that you managed to capture a little piece of 'normal' at Glastonbury and wish you well in your continuing jouney xStephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-23134286575391044612013-07-03T13:02:47.557+01:002013-07-03T13:02:47.557+01:00Absolutely brilliant, you've spoken for so man...Absolutely brilliant, you've spoken for so many of us xxxStephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-47100684396771998042013-07-03T09:39:07.584+01:002013-07-03T09:39:07.584+01:00Thank you for speaking my heart... again! And min...Thank you for speaking my heart... again! And mine are, I am all too aware, much less complex issues... The Glad Game works well a lot of the time, but there is a necessity in letting the pain have its voice as well. If we don't, it will rot us from the inside.<br />Your pain is real, and warranted. And I think it's important for us other SEN mums, but also the big wide world to witness that we are not strong, special or anything like that. We do what must be done, and because we love our children, we do it with a smile (as much as possible). "They" need to see the pain too...<br />All my love, as ever...Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-79519854062474801032013-07-03T07:49:41.799+01:002013-07-03T07:49:41.799+01:00Hugs. No words can help and I have little knowledg...Hugs. No words can help and I have little knowledge of what you go through, but I do relate to the needing to wallow a bit every now and then feeling. Sometimes like sucks- and for you so much more than most other people. Hoping there are more Glastonbury days and similar in the near future for you, and remember however badly you think your kids miss out they will be more aware, sensitive, caring and self sufficient than every other teen on the planet. Because you are amazing 99% of the time. 1% you are human and should never beat yourself up over that. xxStephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-38949914443892203232013-07-03T07:46:10.650+01:002013-07-03T07:46:10.650+01:00This makes for very powerful reading and a very us...This makes for very powerful reading and a very useful insight into a day in the life of someone with a child with complex needs. We see lots of these people on a daily basis but never get a real feel for what is going on for them truly. Pollyanna always felt a little too chirpy anyway! Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-27362505895545711452013-07-03T06:52:23.558+01:002013-07-03T06:52:23.558+01:00I think a lot of people are overwhelmed just think...I think a lot of people are overwhelmed just thinking about what you do. They don't know what to say. I do wish you well, and can only imagine how frustrated you feel. You are welcome to ventwhenever you feel the need. Sending prayers to your family.Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-50350783730228288552013-07-03T00:15:13.809+01:002013-07-03T00:15:13.809+01:00It's totally different situation, but I get th...It's totally different situation, but I get the 'you're so strong, inspirational, blah blah'. I think people use it as a way of trying to be supportive, when they're completely lost with the situation, and possibly even a bit embarrassed, and are trying desperately to say something. I have a complex medical situation, and it's hard enough looking after myself, without having to worry about caring for other people. I'm totally with you on the swearing, nearest I get to alcohol is when opening clinell wipes, or my port being unblocked ;-)<br /><br />Your blog is your place, your space, to say what you really want to say. You don't have to be Pollyanna on here ever. We all need the space to stomp and swear and say how unfair it is, because you know what, it is damn unfair.<br /><br />XxStephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-17808146163384008032013-07-02T23:59:24.915+01:002013-07-02T23:59:24.915+01:00the time Pollyanna could not play the glad game pr...the time Pollyanna could not play the glad game prompted the grownups to rally round in shock. Thinking of you.Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.comtag:blogger.com,1999:blog-18079831.post-47843149905884033102013-07-02T23:53:44.583+01:002013-07-02T23:53:44.583+01:00Love you honey, I get the statement "you are...Love you honey, I get the statement "you are so strong". I'm not I just have no choice. We have to go on. <br /><br />I admire you honey you are one amazing lady.Stephanie Nimmohttps://www.blogger.com/profile/17837022520852263952noreply@blogger.com