Here's another interview as part of my When Life Gives You Lemons series.  I've known Danny and his family for many years.  Danny...

Tonight I'm thinking of the mum of the 18 year old first year nursing student who answered the ward phone during a night shift to have t...

I haven't updated for ages, once again the poor blog has been neglected.  My life has been taken up with lots of writing projects, some ...

Nearly 6 months ago I had to make a decision that no parent should ever have to face.  I had to agree to the hospital turning off my daughte...

We took Daisy back to school for her funeral, one last trip to the school she loved and had attended from the age of three.  I wanted to hid...

So here we are,three weeks later, following a mammoth 8 hour surgery at Great Ormond Street Hospital, Daisy is stable enough to be transfe...

Last week Daisy had her whirlwind, multidisciplinary admission into Great Ormond Street where, following gargantuan planning and co-ordinati...

Anyone who knows Daisy well will know that one of the most important things in her life is Peppa Pig, the cartoon character - in Daisy...

On Sunday I completed my last run in the challenge I had set myself earlier this year to run 7 races to mark 7 years of care by our hospice,...

We know the waiting game well, we parents of children with additional or medical needs.  Waiting for results, waiting for appointments,...

When Daisy was nearly 7 months old she had a gastrostomy tube inserted as an emergency case.  It was an emergency because at the time we wer...

When I walk home with Jules, my 9 year old son, from school we pass a house which has roses in the front garden.  These are not the weedy, i...

Daisy had another hospital stay this week, another surgery, another anaesthetic.  She had to have her Hickman line (the central line tun...

I have amended this quote from one I saw on the back of a running vest as I ran the Bupa London 10k on Sunday - the quote I saw was "my...

I bought myself this necklace this week, I had just picked Daisy up from an overnight respite stay at Shooting Star Chase and droppe...

I'm not really the biggest fan of Christina Aguilera but her song Beautiful has very special significance for me.  When Daisy was...

Yesterday was a good day, not anticipated to be as it involved several appointments at Great Ormond Street.  As we live in London, albeit in...

I remember being about 8 months pregnant with Xanthe , Theo had just turned two, I was wracked with guilt about bringing another child...

The simplest pleasures - I decided to travel to Great Ormond Street by train yesterday as I had been struck with the winter lurgy and couldn...

Oh my goodness, a whole month has flown by and I have not updated this blog - big apologies!!!  I think I'm going to cut and paste some ...