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Showing posts with label Mitrofanoff. Show all posts
Showing posts with label Mitrofanoff. Show all posts
25 July 2012

Take time to smell the roses

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When I walk home with Jules, my 9 year old son, from school we pass a house which has roses in the front garden.  These are not the weedy, i...
5 comments:
24 March 2012

Costello Syndrome Curve Ball

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Daisy has Costello Syndrome -  a very rare genetic syndrome with around 250 reported cases worldwide.  It's caused by a sporadic mutatio...
5 comments:
27 February 2012

Not Waving But Drowning

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Yes, I am still here, I know that it's been a while since I updated but as you can guess from the title of this blog, life has just ...
5 comments:
7 August 2011

Surgery Plans

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Oh my goodness, a whole month has flown by and I have not updated this blog - big apologies!!!  I think I'm going to cut and paste some ...
3 comments:
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