Xanthe took this picture in early January, Daisy was in for an MRI under general anaesthetic as her neurology team tried to work out why...

December will mark 10 years of me riding the "parent of a medically complex child" roller coaster, I have seen a lot of things, be...

When Daisy was nearly 7 months old she had a gastrostomy tube inserted as an emergency case.  It was an emergency because at the time we wer...