I just can't help thinking, if Daisy was still alive, what would it be like? How would we have coped - she would have been one of the so...

I remember when you could walk When you only had one tube attached to a benign pump when we dared to dream about mainstream...

......and so would my children We have had the conversation about what we want to happen to our organs when we die. Have you? Have you...

This picture appeared on my facebook timeline this week.... I get a lot of medical pictures and information coming through my timeline,...

This is the toughest time of the year for us Special Needs Parents, New Year brings with it not a sense of expectation but almost a sense of...

Today is 5 years since I started this blog.  5 years ago, Daisy was 3 years old and was once again in hospital,in the early weeks of a stay ...

A stranger turned up here a few months ago, we hoped they would be a passing house guest but it appears they have taken up residence and tur...

Over the years we have added to and expanded our vocabulary of medical and special needs terms - in the early days it was the language of NI...

Those readers who have followed my blog for a while know that sometimes I drop off the blogging radar, mainly because of workload at h...

Sir Tim Berners-Lee, Inventor of the World Wide Web When I left university and came to London with Andy my first job was a graduate ...

On Sunday I completed my last run in the challenge I had set myself earlier this year to run 7 races to mark 7 years of care by our hospice,...

When Daisy was nearly 7 months old she had a gastrostomy tube inserted as an emergency case.  It was an emergency because at the time we wer...

When I walk home with Jules, my 9 year old son, from school we pass a house which has roses in the front garden.  These are not the weedy, i...

I have amended this quote from one I saw on the back of a running vest as I ran the Bupa London 10k on Sunday - the quote I saw was "my...

Yesterday was a good day, not anticipated to be as it involved several appointments at Great Ormond Street.  As we live in London, albeit in...

We are going on holiday, a real family holiday.  This will be the first holiday in a long time.  We have been very fortunate to have two hol...

I'm participating in the Define Normal Blog Hop  this week where the challenge has been given to us special  needs mums to define what w...

Yes, I am still here, I know that it's been a while since I updated but as you can guess from the title of this blog, life has just ...

Andy is doing the night shift at GOS tonight and I really should be doing domestic goddess things like putting the washing away but instead ...