So we're mid way through March, spring is definitely here in London.  Yesterday I did a 20 mile training run in preparation for the Lond...

This is the makaton sign for sad And this is the makaton sign for Daddy ...

We gave Andy a wonderful send off, filled with friends, laughter, music, stories, just as he wished.  People travelled from all over the wo...

The moment we heard the news that Andy's cancer was now inoperable we knew that the clock was ticking like never before.  We went ho...

30th November, St Andrew's Day. Andy was born on  on the 26th November in Kilmarnock , Scotland.  His parents registered his birth on ...

So here we are,three weeks later, following a mammoth 8 hour surgery at Great Ormond Street Hospital, Daisy is stable enough to be transfe...

I have come to realise that over the past year my life has been guided by Queen Elsa of Arendelle. Yes people, I now look to a fictional a...

It's funny the opportunities adversity can throw at you.  We have found this with Daisy, we have experienced the lowest of lows at ...

Marathon runners know this term well - hitting the wall.  That point in the race where your reserves have run out, you legs are screaming in...

Tomorrow Andy and I go to Glastonbury, after Woodstock probably the most iconic music festival in the world..  Friends, family and regular b...

I've got yet another chest infection, I feel really rough and no doubt, thanks to my asthma, a prescription for a course of steroids wil...

We really don't handle the whole issue of dying well in this country do we?  It's just not something spoken about, a taboo subject...

I guess it's time for an update on Andy's cancer treatment. It's 6 months since he was first diagnosed with stage 4, metasticise...

Sorry readers, I have neglected you for far too long.  Truth is, this crazy, busy, plate spinning life of mine has gone into warp drive and ...

"So this is Christmas, and what have you done?  Another year over, and a new one just begun... " (John Lennon) Well hello 2015, ...

So how do you tell your children that their daddy has cancer?  How do you tell them that it's advanced cancer and he will need a huge re...

There has been a big gap since my last post.   I have had a post in draft for a while, one about the arrival of our lovely little cocker spa...

Daisy has Costello Syndrome -  a very rare genetic syndrome with around 250 reported cases worldwide.  It's caused by a sporadic mutatio...