I am loving this WLGYL series because it has introduced me to some incredible people.  Sometimes those people were under ...

About a week ago my friend Suzanne shared a post on her timeline.  It was a Go Fund Me link for her friend Marni.  Marni ...

A few weeks ago I attended the Women of the World festival in Norwich .  I took part in a panel about how the role of car...

When Life Gives You Lemons is my blog series profiling some of the incredible people I have met during my journey.  Peopl...

The long summer holiday.  Obviously I use the word "summer' in the loosest sense of the word as I have resorted to firing up the wo...

One of the first things I did the day after Andy died was to bag up all his meds, injections and creams and take them back to the hospital. ...

It's so hard to believe that Daisy has gone, that we will not see her any more, that I won't hear her call out "mummyyyyy!!!!!!...

It's been nearly a year now.  It's been a tough year.  So many firsts; first father's day, first mother's day, first wedding...

There are two things that Daisy loves in the world more than her family or her good friends Singing Hands (don't worry Suzanne and Trac...

I try to be a positive role model to my children, I'm always out and about doing some sort of sport, running, swimming, cycling, I wa...

I know I talk about death a lot in this blog, but everyone who knows me personally also knows that I am the most optimistic, positive person...

A couple of weeks ago I decided to take Daisy to an inclusive Dance & Singing workshop at the Royal Festival Hall on the Southbank in Lo...

We are currently entering week 3 of Daisy’s stay at Great Ormond Street hospital.   On the 14 th October she had an 8 hour surgery to her ...

It's funny the opportunities adversity can throw at you.  We have found this with Daisy, we have experienced the lowest of lows at ...

We are back from another epic Glastonbury, batteries recharged and home to the fabulous news that Andy will start SIRT radiotherapy treatmen...

I've got yet another chest infection, I feel really rough and no doubt, thanks to my asthma, a prescription for a course of steroids wil...

A few years ago I wrote a blog post about whether respite was a right or a privilege .  It has always felt like I should be so grateful to t...

Securing an Education, Health & Social Care Plan to support your child's special education needs feels at times like being forced to...

December will mark 10 years of me riding the "parent of a medically complex child" roller coaster, I have seen a lot of things, be...

You have probably noticed that I don't normally jump on the bandwagon when someone makes a crass comment about disability - I might send...