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Showing posts with label
special needs
.
Show all posts
Showing posts with label
special needs
.
Show all posts
3 December 2018
Goodbye Daisy - a book to help children talk about death
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"if you want something you will make it happen...if you dont. you'll find an excuse". A colleague shared these words with me m...
22 August 2017
Long hot summer just passed me by
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The long summer holiday. Obviously I use the word "summer' in the loosest sense of the word as I have resorted to firing up the wo...
20 March 2017
An empty wheelchair
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One of the first things I did the day after Andy died was to bag up all his meds, injections and creams and take them back to the hospital. ...
27 February 2017
The long goodbye
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We took Daisy back to school for her funeral, one last trip to the school she loved and had attended from the age of three. I wanted to hid...
12 February 2017
Coming to terms with it all
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It's so hard to believe that Daisy has gone, that we will not see her any more, that I won't hear her call out "mummyyyyy!!!!!!...
22 November 2016
All the firsts
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It's been nearly a year now. It's been a tough year. So many firsts; first father's day, first mother's day, first wedding...
17 November 2016
The day Sherlock made Daisy smile (thanks to the London Fire Brigade!)
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There are two things that Daisy loves in the world more than her family or her good friends Singing Hands (don't worry Suzanne and Trac...
11 May 2016
Talking about it doesn't mean it's about to happen
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I know I talk about death a lot in this blog, but everyone who knows me personally also knows that I am the most optimistic, positive person...
20 April 2016
It's only been 4 months
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It's only been 4 months. 4 months since I last held Andy's hand, 4 months since he was in this house. In the days and weeks afterwa...
24 March 2016
It's about time we stopped treating disability issues as an afterthought
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A couple of weeks ago I decided to take Daisy to an inclusive Dance & Singing workshop at the Royal Festival Hall on the Southbank in Lo...
5 January 2016
My Eulogy for Andy's Memorial Service
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We gave Andy a wonderful send off, filled with friends, laughter, music, stories, just as he wished. People travelled from all over the wo...
8 September 2015
It's times like these you learn to live again
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It's funny the opportunities adversity can throw at you. We have found this with Daisy, we have experienced the lowest of lows at ...
5 September 2015
Hitting the Wall
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Marathon runners know this term well - hitting the wall. That point in the race where your reserves have run out, you legs are screaming in...
13 July 2015
A Landmark Supreme Court Victory for Children Like Daisy
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There was an interim budget last week in the UK. Another round of austerity measures, more cuts, more worrying times for those of us, forc...
14 June 2015
When carers get sick
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I've got yet another chest infection, I feel really rough and no doubt, thanks to my asthma, a prescription for a course of steroids wil...
4 comments:
8 June 2015
Give the invisible children a break too
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A few years ago I wrote a blog post about whether respite was a right or a privilege . It has always felt like I should be so grateful to t...
15 May 2015
The EHCP Process: An exercise in jumping through hoops?
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Securing an Education, Health & Social Care Plan to support your child's special education needs feels at times like being forced to...
2 comments:
30 March 2015
A&E is not a dumping ground
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Before children I had never paid a visit to the local accident and emergency department as an adult. When my first three came along I had ...
1 comment:
19 March 2015
Overcoming my British reserve (all thanks to Amanda Palmer)
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When I go to Glastonbury I prefer to wander around around, discovering music that I might not otherwise have heard if I stuck to a rigid li...
2 comments:
26 February 2015
Learning to dance in the rain
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Sorry readers, I have neglected you for far too long. Truth is, this crazy, busy, plate spinning life of mine has gone into warp drive and ...
4 comments:
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