Same old, same old - Daisy has infection, Daisy recovers from infection, gut becomes inflamed again, feeds not tolerated - and on and on and...

A friend of mine in a similar situation once described this life as like a game of snakes and ladders - you climb a ladder and make some pro...

So we got Daisy over her latest line infection and managed to save the line and life was ticking along, with the big focus on her next admis...

I guess I blogged too soon......at 6am this morning I had a call from Chase to say that Daisy's temp had spiked to 41.5 and they had cal...

We achieved another milestone yesterday. Since Christmas every time we have tried to get another break at our hospice our plans have been sc...

Daisy's first afternoon back at school We are trying to take Daisy to school for 2 -3 afternoons a week to coincide with her breaks fr...

At last we have moved into a new chapter in Daisy's life. She is now able to tolerate 6 hours off TPN!!! This means for 6 hours of the...

Well the good news is we are back at Queen Mary's! Daisy had a new Hickman line placed and her picc line removed last Tuesday and was t...