Daisy is Home!!!!!!!!!!! Obviously, given the time which has elapsed between this and the last post you can guess there were ...

Yes - we're still in Great Ormond Street but hopefully the end of our hospital life is in sight as we have another possible date for rel...

an unexpected visit from Johnny Depp dressed as Captain Jack Sparrow.....he has strong links with the hospital after they saved his daugh...

Same old, same old - Daisy has infection, Daisy recovers from infection, gut becomes inflamed again, feeds not tolerated - and on and on and...

A friend of mine in a similar situation once described this life as like a game of snakes and ladders - you climb a ladder and make some pro...

So we got Daisy over her latest line infection and managed to save the line and life was ticking along, with the big focus on her next admis...

I guess I blogged too soon......at 6am this morning I had a call from Chase to say that Daisy's temp had spiked to 41.5 and they had cal...

We achieved another milestone yesterday. Since Christmas every time we have tried to get another break at our hospice our plans have been sc...