We lasted 18 days at home before a return to hospital....I have been putting off updating this blog because I wanted to write that we were b...

Daisy has now been home for 2 weeks and, just like the pain of childbirth, memories of the endless months in hospital are slowly disappearin...

Daisy is Home!!!!!!!!!!! Obviously, given the time which has elapsed between this and the last post you can guess there were ...

Yes - we're still in Great Ormond Street but hopefully the end of our hospital life is in sight as we have another possible date for rel...

an unexpected visit from Johnny Depp dressed as Captain Jack Sparrow.....he has strong links with the hospital after they saved his daugh...

Same old, same old - Daisy has infection, Daisy recovers from infection, gut becomes inflamed again, feeds not tolerated - and on and on and...

A friend of mine in a similar situation once described this life as like a game of snakes and ladders - you climb a ladder and make some pro...

So we got Daisy over her latest line infection and managed to save the line and life was ticking along, with the big focus on her next admis...