So we are nearing the end of March and still our battles with Daisy go on. This year we have already racked up 5 hospital stays, and the fac...

Every day my youngest daughter's capacity to overcome the odds that are stacked against her completely amaze me. Yesterday she had a du...

Merry Christmas and a Happy New Year

Well, after much cajoling by family and friends, I am back to blogging.... to be honest it has been difficult to fit in the time to write no...

Apologies again for not updating more frequently - I'm sure I'm breaking the European Working time directive rules on the number of ...

Well, so far, so good, I am pleased to report we are still out of hospital and only visiting as an outpatient. My workload has not eased ho...

We lasted 18 days at home before a return to hospital....I have been putting off updating this blog because I wanted to write that we were b...

Daisy has now been home for 2 weeks and, just like the pain of childbirth, memories of the endless months in hospital are slowly disappearin...