So much happens between posts, it's no wonder I don't find the time to update as often as I should.  So, since the last post Daisy h...

So now it is June and still Daisy has not had her ileostomy surgery...we did have a near miss last Wednesday when I received a call while ou...

Dressed as Peter Pan during the celebrations for Peter Pan week at Great Ormond Street Beautiful raspberry pink casts, her nails have now ...

Well guess where we are? Yes that’s right – still in hospital!!! In fact as I write we are on our home ward at Great Ormond Street Hospital ...

After much soul searching and wishing we could see into the future, Andy and I decided that it was inevitable that the ileostomy is going to...

So we are nearing the end of March and still our battles with Daisy go on. This year we have already racked up 5 hospital stays, and the fac...

Every day my youngest daughter's capacity to overcome the odds that are stacked against her completely amaze me. Yesterday she had a du...

Merry Christmas and a Happy New Year