Well we lasted six whole weeks out of hospital, and I guess all good things come to an end as by week six Daisy was spiking temperatures and...

We have reached a big milestone...I was so busy getting on with life I didn't even notice that this is the longest we have spent out ...

Gosh, it has been so long since I have posted, and as always as a family we have adapted and changed to accomodate Daisy's ever changing...

Three weeks ago today Daisy had her ileostomy surgery and as we all know, three weeks is a long time in our world…… The surgery itself we...

Well it turned out that a weekend in Glastonbury was just what I needed to recharge my batteries and prepare for Daisy's impending surge...

So much happens between posts, it's no wonder I don't find the time to update as often as I should.  So, since the last post Daisy h...

So now it is June and still Daisy has not had her ileostomy surgery...we did have a near miss last Wednesday when I received a call while ou...

Dressed as Peter Pan during the celebrations for Peter Pan week at Great Ormond Street Beautiful raspberry pink casts, her nails have now ...