Two weeks post surgery and this amazing girl continues to defy the odds and exceed expectations.  No-one who knows Daisy well would have bel...

Today is day three post surgery and Daisy is still in a lot of pain.  Her morphine and ketamine have been pushed up as last night her epidur...

well, Daisy now officially has only 5cm of large bowel left, a Mitrofanoff channel formed from her appendix for catheterisation and as a bon...

Compared to the past three years, this has been the best summer yet for our family, however as always it was marked by hospital stays and em...

Happy days in Highgate Visiting Peppa Pig World Chilling with big sis Xanthe

Oh my goodness, a whole month has flown by and I have not updated this blog - big apologies!!!  I think I'm going to cut and paste some ...

While staying at the hospice Daisy was delighted to receive a T shirt of her namesake from one of our friends at Post Pals ( http://www.po...

Well as always the long gap between posts is because the best laid plans in our world really never go according to plan.  I wish I had the l...