The simplest pleasures - I decided to travel to Great Ormond Street by train yesterday as I had been struck with the winter lurgy and couldn...

Well we left Great Ormond Street on Monday 17th October, very late at night (anyone who has been long term in hospital knows how long it tak...

While having a quick tea break in the parent's kitchen today I got talking to the mum from the next door cubicle, recently arrived with ...

Into week five now and this is where things get interesting - not for the doctors or surgeons, they have done their bit, and very successful...

Two weeks post surgery and this amazing girl continues to defy the odds and exceed expectations.  No-one who knows Daisy well would have bel...

Today is day three post surgery and Daisy is still in a lot of pain.  Her morphine and ketamine have been pushed up as last night her epidur...

well, Daisy now officially has only 5cm of large bowel left, a Mitrofanoff channel formed from her appendix for catheterisation and as a bon...

Compared to the past three years, this has been the best summer yet for our family, however as always it was marked by hospital stays and em...