So, it's New Year's Eve and already the stream of texts and emails are coming through from friends and family over the world, full o...

Despite everything going on Daisy is determined to live life to the full - here is a selection of pictures of Daisy having fun on her birthd...

We have entered a new phase of our lives as a family with Daisy, the phase where there is nothing more that can be done, where the only acti...

The simplest pleasures - I decided to travel to Great Ormond Street by train yesterday as I had been struck with the winter lurgy and couldn...

Well we left Great Ormond Street on Monday 17th October, very late at night (anyone who has been long term in hospital knows how long it tak...

While having a quick tea break in the parent's kitchen today I got talking to the mum from the next door cubicle, recently arrived with ...

Into week five now and this is where things get interesting - not for the doctors or surgeons, they have done their bit, and very successful...

Two weeks post surgery and this amazing girl continues to defy the odds and exceed expectations.  No-one who knows Daisy well would have bel...