I heard this week that my blog has been shortlisted in the the Inspire category of the equivalent of the the blog oscars, the Brillia...

Today we sent a letter to our local education authority, we have made a request for yet another of our children to be assessed for support f...

This Sunday I am running the London Marathon again.  I ran it last year thanks to a golden bond place from ShootingStar-Chase, Daisy's H...

It's always great when a plan comes together and the beginning of this year has seen all the frantic and stressful attempts at trying to...

28 February 2014 marks the seventh international Rare Disease Day coordinated by EURORDIS . On and around this day hundreds of patient orga...

Last week Daisy had her whirlwind, multidisciplinary admission into Great Ormond Street where, following gargantuan planning and co-ordinati...

OK first things first - what in heaven's name is Team Honk?  Team Honk is the name of a social media phenomenon, driven by bloggers to r...