They said you wouldn't make it the doctors, the medics. They said go home, enjoy your time.

So how do you tell your children that their daddy has cancer?  How do you tell them that it's advanced cancer and he will need a huge re...

There has been a big gap since my last post.   I have had a post in draft for a while, one about the arrival of our lovely little cocker spa...

December will mark 10 years of me riding the "parent of a medically complex child" roller coaster, I have seen a lot of things, be...

The Ice Bucket Challenge - that all went pretty viral very quickly didn't it? One minute some sports people in the US are filmed pouri...

You have probably noticed that I don't normally jump on the bandwagon when someone makes a crass comment about disability - I might send...

I remember when you could walk When you only had one tube attached to a benign pump when we dared to dream about mainstream...

......and so would my children We have had the conversation about what we want to happen to our organs when we die. Have you? Have you...