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24 July 2015
The Medical Symposium, the Ordinary Mum and the story of an Extraordinary Girl
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I'm writing this in a somewhat jetlagged state...... Yes! I made it, following my successful crowdfunding campaign I was able to fly ...
1 comment:
13 July 2015
A Landmark Supreme Court Victory for Children Like Daisy
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There was an interim budget last week in the UK. Another round of austerity measures, more cuts, more worrying times for those of us, forc...
2 July 2015
Accessible Glastonbury
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We are back from another epic Glastonbury, batteries recharged and home to the fabulous news that Andy will start SIRT radiotherapy treatmen...
2 comments:
24 June 2015
Off to recharge our batteries
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Tomorrow Andy and I go to Glastonbury, after Woodstock probably the most iconic music festival in the world.. Friends, family and regular b...
14 June 2015
When carers get sick
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I've got yet another chest infection, I feel really rough and no doubt, thanks to my asthma, a prescription for a course of steroids wil...
4 comments:
8 June 2015
Give the invisible children a break too
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A few years ago I wrote a blog post about whether respite was a right or a privilege . It has always felt like I should be so grateful to t...
15 May 2015
The EHCP Process: An exercise in jumping through hoops?
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Securing an Education, Health & Social Care Plan to support your child's special education needs feels at times like being forced to...
2 comments:
2 May 2015
Let's talk about death (so we can get on with living)
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We really don't handle the whole issue of dying well in this country do we? It's just not something spoken about, a taboo subject...
3 comments:
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