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Daisy's Story/Costello Syndrome
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30 November 2015
St Andrew's Day 2015
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30th November, St Andrew's Day. Andy was born on on the 26th November in Kilmarnock , Scotland. His parents registered his birth on ...
3 November 2015
Cancerversary
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So here we are,three weeks later, following a mammoth 8 hour surgery at Great Ormond Street Hospital, Daisy is stable enough to be transfe...
26 October 2015
Parenting - the toughest job in the world (and don't expect the little darlings to thank you either)
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We are currently entering week 3 of Daisy’s stay at Great Ormond Street hospital. On the 14 th October she had an 8 hour surgery to her ...
7 October 2015
Conceal it, don't feel it
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I have come to realise that over the past year my life has been guided by Queen Elsa of Arendelle. Yes people, I now look to a fictional a...
8 September 2015
It's times like these you learn to live again
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It's funny the opportunities adversity can throw at you. We have found this with Daisy, we have experienced the lowest of lows at ...
5 September 2015
Hitting the Wall
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Marathon runners know this term well - hitting the wall. That point in the race where your reserves have run out, you legs are screaming in...
24 July 2015
The Medical Symposium, the Ordinary Mum and the story of an Extraordinary Girl
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I'm writing this in a somewhat jetlagged state...... Yes! I made it, following my successful crowdfunding campaign I was able to fly ...
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13 July 2015
A Landmark Supreme Court Victory for Children Like Daisy
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There was an interim budget last week in the UK. Another round of austerity measures, more cuts, more worrying times for those of us, forc...
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