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26 July 2017
The decision no parent should ever have to face
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Nearly 6 months ago I had to make a decision that no parent should ever have to face. I had to agree to the hospital turning off my daughte...
21 July 2017
These foolish things remind me of you
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It catches you unawares, when you least expect it. Those little things. I'll be in a shop and see a something that I know Daisy wo...
18 June 2017
Happy Father's Day (especially to those of us pulling the double shift)
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Every year on Father's day I send a message to other mums I know who are single parents, acknowledging that they are pulling the dou...
26 May 2017
Diagnosing autism - services need to be increased, not reduced.
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If you are a regular reader of my blog you probably know that my two boys both have a diagnosis of high functioning autism, sometimes called...
2 May 2017
The lottery of life
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Xanthe took this picture in early January, Daisy was in for an MRI under general anaesthetic as her neurology team tried to work out why...
22 April 2017
Back in the narrative
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Andy and I believed strongly that experiences of life were as important a part of our children's upbringing as their formal education. ...
28 March 2017
I have written a book
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"You should write a book" I've lost count of the number of people who have said that to me over the years. So I did. h...
20 March 2017
An empty wheelchair
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One of the first things I did the day after Andy died was to bag up all his meds, injections and creams and take them back to the hospital. ...
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