I had a dream the other night, it's one I have quite a lot .  The one where I am on my own at home, doing Daisy's IVs late at night ...

I haven't updated for ages, once again the poor blog has been neglected.  My life has been taken up with lots of writing projects, some ...

Christmas.  For Daisy this was the most important time of the year (closely followed by her birthday, and then everyone else's birthdays...

Daisy was born with a completely sporadic gene mutation which caused her to have the rare disease, Costello Syndrome.  She was rare, esp...

The best piece of advice I have ever been given was by a colleague when I was working at Hewlett Packard.  I really wanted a global role and...

The long summer holiday.  Obviously I use the word "summer' in the loosest sense of the word as I have resorted to firing up the wo...

Nearly 6 months ago I had to make a decision that no parent should ever have to face.  I had to agree to the hospital turning off my daughte...