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Daisy's Story/Costello Syndrome
When Life Gives You Lemons
Autism/SEN
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31 December 2017
Definitely not in the plan
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We survived Christmas, just. It was as anticipated, fraught. It was Daisy's excitement that made Christmas special. Like any family w...
22 December 2017
Forever Twelve
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It's Daisy's birthday. She would be a teenager today. But now she will be forever twelve. I'm not sure how I feel. If Daisy...
15 December 2017
Song for Ten. Two years in.
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"A young widow is a statistical outlier" - I read that in a paper today, it was part of a feature on Christmases without your h...
10 December 2017
Deck the halls
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It was always our rule to wait until 12th December to put our Christmas decorations up in our family. That's my dad's birthday. Ev...
27 November 2017
WTITP Launch video
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14 November 2017
Always on a Friday evening.....
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I had a dream the other night, it's one I have quite a lot . The one where I am on my own at home, doing Daisy's IVs late at night ...
23 October 2017
Snakes and Ladders
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I haven't updated for ages, once again the poor blog has been neglected. My life has been taken up with lots of writing projects, some ...
24 September 2017
Be careful what you wish for
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Christmas. For Daisy this was the most important time of the year (closely followed by her birthday, and then everyone else's birthdays...
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