It's Daisy's birthday today.  She would have been 17, she will be forever 12.  Next year it will be five long years since I kissed h...

This is the last ever picture I shared of Daisy before she died.  It's the day before she died, she was deteriorating but had not...

"Find your tribe", it's the advice I give the many parents of children with additional needs who contact me.  It doesn...

Palliative Care. It's been in the news a lot this week.  And as I've seen yet another case of a child who needs a referral to pallia...

Tonight I'm thinking of the mum of the 18 year old first year nursing student who answered the ward phone during a night shift to have t...

Daisy loved school.  Nothing made her happier after a hospital stay to put on her school jumper and know that it was a school day.  Always t...

I was 36 when Daisy was born.  I already had seven years of parenting under my belt. I was acutely aware that in many ways I had s...

A year ago I woke up and gathered every last shred of strength I could muster to get out of bed.  I did my hair and makeup and put on a brig...

You were here and now you are gone and my arms ache for you. Did I do enough? Did you know how much I loved you? Did I spend...

We survived Christmas, just.  It was as anticipated, fraught.  It was Daisy's excitement that made Christmas special.  Like any family w...

It was always our rule to wait until 12th December to put our Christmas decorations up in our family.  That's my dad's birthday.  Ev...

I had a dream the other night, it's one I have quite a lot .  The one where I am on my own at home, doing Daisy's IVs late at night ...

Christmas.  For Daisy this was the most important time of the year (closely followed by her birthday, and then everyone else's birthdays...

Daisy was born with a completely sporadic gene mutation which caused her to have the rare disease, Costello Syndrome.  She was rare, esp...

Nearly 6 months ago I had to make a decision that no parent should ever have to face.  I had to agree to the hospital turning off my daughte...

It catches you unawares, when you least expect it.  Those little things.  I'll be   in a shop and see a something that I know Daisy wo...

Xanthe took this picture in early January, Daisy was in for an MRI under general anaesthetic as her neurology team tried to work out why...

We took Daisy back to school for her funeral, one last trip to the school she loved and had attended from the age of three.  I wanted to hid...

It's so hard to believe that Daisy has gone, that we will not see her any more, that I won't hear her call out "mummyyyyy!!!!!!...

Daisy was born by c-section.  That wasn't in the plan.  My other children hadn't been born that way.  We had hoped for a home waterb...