"Find your tribe", it's the advice I give the many parents of children with additional needs who contact me.  It doesn...

I'm writing this in a somewhat jetlagged state...... Yes!  I made it, following my successful crowdfunding campaign I was able to fly ...

When I go to Glastonbury I prefer to wander around around, discovering music that I might not otherwise have heard if I stuck to a rigid li...

28 February 2014 marks the seventh international Rare Disease Day coordinated by EURORDIS . On and around this day hundreds of patient orga...