"Find your tribe", it's the advice I give the many parents of children with additional needs who contact me.  It doesn...

I'm so busy at the moment, it's crazy!  Juggling the demands of my day job three days a week with freelance commitments and campaign...

You were here and now you are gone and my arms ache for you. Did I do enough? Did you know how much I loved you? Did I spend...

Daisy was born with a completely sporadic gene mutation which caused her to have the rare disease, Costello Syndrome.  She was rare, esp...

Nearly 6 months ago I had to make a decision that no parent should ever have to face.  I had to agree to the hospital turning off my daughte...

We took Daisy back to school for her funeral, one last trip to the school she loved and had attended from the age of three.  I wanted to hid...

"I don't make resolutions" Andy always made this announcement at New Year (whenever I started reeling out my list for the ye...

Daisy was born by c-section.  That wasn't in the plan.  My other children hadn't been born that way.  We had hoped for a home waterb...

So here we are,three weeks later, following a mammoth 8 hour surgery at Great Ormond Street Hospital, Daisy is stable enough to be transfe...

I have come to realise that over the past year my life has been guided by Queen Elsa of Arendelle. Yes people, I now look to a fictional a...

Marathon runners know this term well - hitting the wall.  That point in the race where your reserves have run out, you legs are screaming in...

I'm writing this in a somewhat jetlagged state...... Yes!  I made it, following my successful crowdfunding campaign I was able to fly ...

We really don't handle the whole issue of dying well in this country do we?  It's just not something spoken about, a taboo subject...

When I go to Glastonbury I prefer to wander around around, discovering music that I might not otherwise have heard if I stuck to a rigid li...

Sorry readers, I have neglected you for far too long.  Truth is, this crazy, busy, plate spinning life of mine has gone into warp drive and ...

"So this is Christmas, and what have you done?  Another year over, and a new one just begun... " (John Lennon) Well hello 2015, ...

They said you wouldn't make it the doctors, the medics. They said go home, enjoy your time.

There has been a big gap since my last post.   I have had a post in draft for a while, one about the arrival of our lovely little cocker spa...

You have probably noticed that I don't normally jump on the bandwagon when someone makes a crass comment about disability - I might send...

I remember when you could walk When you only had one tube attached to a benign pump when we dared to dream about mainstream...