I guess I blogged too soon......at 6am this morning I had a call from Chase to say that Daisy's temp had spiked to 41.5 and they had cal...

We achieved another milestone yesterday. Since Christmas every time we have tried to get another break at our hospice our plans have been sc...

Daisy's first afternoon back at school We are trying to take Daisy to school for 2 -3 afternoons a week to coincide with her breaks fr...

At last we have moved into a new chapter in Daisy's life. She is now able to tolerate 6 hours off TPN!!! This means for 6 hours of the...

Well the good news is we are back at Queen Mary's! Daisy had a new Hickman line placed and her picc line removed last Tuesday and was t...

So, you know what it's like, you transfer to Great Ormond Street for a couple of days for a quick upper and lower endoscopy and end up ...

People keep asking me how come I am so chilled about things, I guess over four years of this bumpy ride with Daisy has taught me to try and ...

I suppose you could say that we are having a typical Daisy stay at Great Ormond Street in that nothing is going to plan...The good news is t...