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Daisy's Story/Costello Syndrome
When Life Gives You Lemons
Autism/SEN
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What's your grief
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This is the last ever picture I shared of Daisy before she died. It's the day before she died, she was deteriorating but had not...
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Make 2020 the year you write your Living Will
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I love lists. Ask my children. There are lists everywhere in the house. On the blackboard in the kitchen, on the whiteboard in my office. Ch...
Hospice UK Conference Talk
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Last Friday I was honoured to be invited to speak at the Hospice UK conference in Liverpool. I was interviewed by Tracey Bleakely, their CE...
My speech to the Institute of Medical Ethics
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A few weeks ago I was invited to deliver a memorial lecture at the Institute of Medical Ethics. For the benefit of those who were unable t...
A Family Reunion
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"Find your tribe", it's the advice I give the many parents of children with additional needs who contact me. It doesn...
Lucy's Light: Podcast Interview
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I was recently for my friend Lucy Watt's podcast. You will know her from my When Life Gives You Lemons interview . Lucy and I have kn...
The Children's Hospice Crisis, part of a bigger problem....
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It was my birthday this week, another turn around the sun and another year I'm grateful to be alive and brimming with plans. But inste...
Vaccinations: More important than ever.
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I found myself in a curious situation this week when I actually agreed with Donald Trump: "They have to get the shots. The vaccinati...
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