A tale of 3 Marathons (The Postscript)

I am now the proud owner of 3 marathon medals, the newest and the shiniest is my medal for the 2013 Virgin London Marathon which I completed in 4 hours and 19 seconds - darn you unravelled shoelaces, you cost me a sub four!!!  In fact my garmin watch does tell me that I completed the marathon distance in 3 hours and 58 seconds but weaving in and out of other runners adds precious inches to that distance.

A tale of 3 Marathons

For those of you who don't know, on Sunday 21 April I will be joining 35, 0000 other people in running the Virgin London Marathon 2013.

If you follow this blog you will know that I returned to running in January last year, joining my local club, Wimbledon Windmilers and taking on the challenge to run 7 races to mark the 7 years of care our family have received from our wonderful hospice, ShootingStar-Chase.  You can read more about this here This Mother's Day I will be mostly... and here Fundraising for our Hospice.

Why vaccination is a no brainer for me

There is currently a measles epidemic in South Wales.  Measles epidemic?  A disease that was almost eradicated in the UK? But we have a UK wide vaccination programme - how can it be possible?

How can it be that  the UK had the second highest number of measles cases in Europe last year with 1,902 confirmed cases  not including the new cases in South Wales?  (The European total was 8,230).

It seems in the UK we are still paying the price for the scaremongering caused by the flawed "research" by Andrew Wakefield claiming a link between the MMR Jab & autism. His hypothesis is that he found a new form of bowel disease that was only present in autistic children and he linked this to the MMR jab.   And so he opened Pandora's Box as parents made the connection between MMR and Autism, despite the original Wakefield report being shown to be completely flawed, the author to have multiple conflicts of interest and to have manipulated evidence, despite Andrew Wakefield being struck off the Medical Register by the General Medical Council. Despite multiple studies which showed no link between the MMR vaccine and autism the seed of doubt had been sown in the minds of otherwise intelligent people.

What I told the Minister (& what I would have told him if I had more time!)

So what do you get when you put 11 very opinionated, passionate, at the end of their tether Mothers of children with Special Needs Children in a room with the Minister for children?  A meeting that almost became a group therapy session that could have run all day if the very harassed clock watching aides would have allowed it.

I'm third from the left in the black dress

I met with Edward Timpson, MP - officially known as the Parliamentary Undersecretary of State (Children & Families) earlier this week as part of a delegation of Bloggers with an interest in SEN invited by the Tots100 bloggers forum.  We were specifically invited to discuss our experiences of the Special Education Needs system - each of us bore our individual battle scars from our dealings with the system and over and over the same themes came up, and in a way it was good to know that I was not alone in my battle to ensure that ALL my children achieved their potential, regardless of their ability or disability, age or gender.

Engage brain before opening mouth

I am very fortunate as I can probably count on the fingers of one hand the times when someone has said something negative to my face about Daisy, and even those times the intention was not spiteful, it was more a case of the person who made the comment not thinking it through and quite clearly being from a different value set to me.  Like the nurse, who in the middle of the night, as she brought in yet another IV for a screaming Daisy, turned to me and said, in a very matter of fact way "do you ever think that Daisy just shouldn't have been here..."

Life in the SEN Pinball Machine

Just blowing the dust and cobwebs off the blog before I begin..... not only has my trusty laptop failed me and just like in the early months of this blog I am reduced to borrowing my son's computer, I am also just about emerging battered and bruised from what can only be described a rocky start to 2013.

Life is never going to be easy parenting four children, especially when two of them require additional attention but when you are also battling the system to get your children the support and help you need then reserves run dry very quickly.

Just keep swimming........

Those readers who have followed my blog for a while know that sometimes I drop off the blogging radar, mainly because of workload at home or sometimes because I have lost my blogging mojo.  I guess the last few weeks has been a combination of the two.  Poor Andy still has his arm in plaster following a (non-alcohol related) fall the day after his 50th birthday, and this has meant my workload has gone sky high as a broken

Daisy on Text Santa

Here's Daisy's story featured as part of the Text Santa appeal show which went out in the UK on Friday evening.  So proud of my little girl!