We are currently
entering week 3 of Daisy’s stay at Great Ormond Street hospital. On the 14th October she had
an 8 hour surgery to her bladder and abdomen aimed at sorting some ongoing
problems and creating some solutions which will improve her quality of
life. Thanks to the wonderful,
skilled team looking after her the surgery went really well and she is
recovering slowly but surely, the ongoing issue, as always, being the
management of her pain . Of course
Daisy loves to move the goal posts every now and then, this admission she
developed an extreme sensitivity to intravenous morphine which means we really
can’t use it.
It’s been so difficult
dividing myself between here and home, making sure Andy is eating OK, rushing
to meet him at outpatients appointments.
And while our other three children are now teenagers, in many ways they
need me now more than ever to be a listening ear and to help source the lost
travel card from a distance (I have special skills in this department).
