Was this in the Plan?: June 2020

Protecting the herd

I just can't help thinking, if Daisy was still alive, what would it be like? How would we have coped - she would have been one of the so-called "shielded ones", those who received a letter at the beginning of lockdown telling them to stay at home for twelve weeks and not venture outside.

Picture of Daisy in her wheelchair in the back of her wheelchair van. She is smiling and happy , on her way to school

Her school is closed. She barely went to school in her final year anyway, there were so many problems trying to get nurses able to be with her in school and I was concerned for her safety. So I guess I would have been attempting to home school her. She would have been missing her friends, missing walks in the park, her regular trips to the local shops which she loved so much.

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This is the story of my family, and how we are learning to thrive and not just survive when life didn't go quite as we planned.

I'm Steph, a suburban mother, sometime Marketing Director, now family plate spinner, journalist, carer, nurse, spokesperson, campaigner and marathon runner (actual as well as metaphorical).

I have four extraordinary children, my two boys have a diagnosis of high functioning autism yet they could not be more different, my eldest daughter is a creative social justice warrior, my youngest daughter was born with a very rare genetic condition.

In December 2015 I also became a widow, my husband, the father of my children & partner of 27 years, Andy, died of cancer, leaving us with a gaping hole in our lives. 13 months later our darling daughter Daisy died.

My life was never going to be predictable but as Andy always said, it is what it is, it's how you respond which makes the difference.

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Protecting the herd

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