It's times like these you learn to live again

It's funny the opportunities adversity can throw at you.  We have found this with Daisy, we have experienced the lowest of lows at times but also have had a world opened up to us that would never have been possible if we had not been the parents of life limited child with her level of complexity (and huge personality!).

Hitting the Wall

Marathon runners know this term well - hitting the wall.  That point in the race where your reserves have run out, you legs are screaming in pain and you have to do all you can to overcome that voice in your head which is saying "you can't do this".

We have hit the wall. Not surprisingly really, 17 rounds of gruelling chemo over 3 days, an intensive course of Selective Internal Radiation Therapy (SIRT), coupled with a very complicated family life is going to have it's toll.

Off to recharge our batteries

Tomorrow Andy and I go to Glastonbury, after Woodstock probably the most iconic music festival in the world..  Friends, family and regular blog readers know that Glasto is my happy place, it's where I can be me, indulge my passion for music, food, dancing, life.

I was so worried a couple of years ago when Andy finally agreed to come along,  I didn't want him to hate the place and not "get" why I love it so much, I needn't have been concerned, he loved it too,  he has since come along to Latitude Festival as well and has truly got the festival bug, aided by the fact that we can really take advantage of the home comforts of our retro VW Camper Van, Charlie.

Cancer Relationship Status: It's Complicated

I guess it's time for an update on Andy's cancer treatment. It's 6 months since he was first diagnosed with stage 4, metasticised colorectal cancer.  On diagnosis he was found to have a large tumour in his bowel which has burst out of the wall and three very large tumours on his liver.  He started on a very brutal chemo regimen of 3 different chemo drugs plus a monoclonal antibody and after 8 rounds scans showed the tumours had shrunk back by nearly 50%.