Was this in the Plan?: disability living allowance

Showing posts with label disability living allowance. Show all posts

13 July 2015

A Landmark Supreme Court Victory for Children Like Daisy

There was an interim budget last week in the UK. Another round of austerity measures, more cuts, more worrying times for those of us, forced through circumstances, to rely heavily on our benefits system.

On the same day as the budget, there was also a glimmer of hope for parents caring for some of the sickest and most complex children in the UK. You probably didn't even notice it, but there was a landmark victory in the Supreme Court. It unanimously ruled that taking away Disability Living Allowance (DLA) from a disabled child after he had been in hospital for more than 84 days is in breach of his human rights and unlawful. This was the first time the Supreme Court has ever found for a claimant in a Social Security Case.

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This is the story of my family, and how we are learning to thrive and not just survive when life didn't go quite as we planned.

I'm Steph, a suburban mother, sometime Marketing Director, now family plate spinner, journalist, carer, nurse, spokesperson, campaigner and marathon runner (actual as well as metaphorical).

I have four extraordinary children, my two boys have a diagnosis of high functioning autism yet they could not be more different, my eldest daughter is a creative social justice warrior, my youngest daughter was born with a very rare genetic condition.

In December 2015 I also became a widow, my husband, the father of my children & partner of 27 years, Andy, died of cancer, leaving us with a gaping hole in our lives. 13 months later our darling daughter Daisy died.

My life was never going to be predictable but as Andy always said, it is what it is, it's how you respond which makes the difference.

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13 July 2015

A Landmark Supreme Court Victory for Children Like Daisy

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