"a third of our family has gone..."
My eldest son has aspergers. His directness and honesty can be bluntly refreshing. It's true, we are now a third smaller, four instead of six.
The past year, since Daisy died, has been spent trying to adjust yet again to our new family dynamic. This summer it really came together, we have reformed as a unit of four, all of us intent on our paths, strongly looking forward, resolute to keep going.
I feel that we have turned a corner over the past few months, accepting where we are now, starting to look forward, beginning to make our way again.
Things you might like to know...
Showing posts with label resilience. Show all posts
Showing posts with label resilience. Show all posts
13 September 2018
23 October 2017
Snakes and Ladders
I haven't updated for ages, once again the poor blog has been neglected. My life has been taken up with lots of writing projects, some freelance commissions as I try to earn some money and lots of opportunities to speak and share my story.
Sharing my story - that's the common theme in everything I've been doing recently, not just to simply share my own story but in doing so hopefully encourage others to share theirs or even be a voice for those who cannot share theirs. I want to share our story because talking about Daisy and Andy keeps them alive, it helps people to know them as people, not the pieces of an awful tragedy.
I find it therapeutic but it is also emotionally draining, I watch the faces of the people in the audience and I see their reactions as I speak. Some people inevitably cry. But the more I share the more people open up with their stories and that must be a good thing.
I've been involved in a couple of "Was this in the plan?" versions of Death Cafes over the past few weeks. Amending the traditional "Death Cafe" format to include conversation starters and an opportunity to share my story to demonstrate to the attendees that it's OK to talk about death, it's actually quite liberating. There was a lot of laughter at both events and there will be more, I promise.
Sharing my story - that's the common theme in everything I've been doing recently, not just to simply share my own story but in doing so hopefully encourage others to share theirs or even be a voice for those who cannot share theirs. I want to share our story because talking about Daisy and Andy keeps them alive, it helps people to know them as people, not the pieces of an awful tragedy.
I find it therapeutic but it is also emotionally draining, I watch the faces of the people in the audience and I see their reactions as I speak. Some people inevitably cry. But the more I share the more people open up with their stories and that must be a good thing.
I've been involved in a couple of "Was this in the plan?" versions of Death Cafes over the past few weeks. Amending the traditional "Death Cafe" format to include conversation starters and an opportunity to share my story to demonstrate to the attendees that it's OK to talk about death, it's actually quite liberating. There was a lot of laughter at both events and there will be more, I promise.
Subscribe to:
Comments (Atom)
Labels
special needs
(87)
costello syndrome
(48)
disability
(37)
Great Ormond Street
(21)
TPN
(19)
aspergers
(19)
cancer
(18)
carers
(18)
parenting
(16)
children's hospice
(11)
autism
(10)
shooting star chase
(10)
Blogging
(6)
family
(6)
SEN
(5)
hospice
(5)
Mitrofanoff
(4)
diagnosis
(4)
BIBs
(3)
Britmums
(3)
Neuropathic Bladder
(3)
communication
(3)
holiday
(3)
benefit cuts
(2)
david cameron
(2)
gastroenterology
(2)
singing hands
(2)
travel insurance
(2)
BSL
(1)
Child Hospice
(1)
Colectomy
(1)
antibiotics
(1)
benefit scrounger
(1)
bladder
(1)
france
(1)
health
(1)
line infection
(1)
makaton
(1)
portage
(1)
siblings
(1)
sign language
(1)
sign supported english
(1)
ultrasound
(1)

